Support
ausEE is here to support individuals and the entire family unit when managing an eosinophilic disease.
Online Support
Support forums take place in our private Facebook groups where you can share your lived experience and connect with others. A private group means whilst anyone can find the group, only members can see posts.
Facebook group for individuals, parents and carers of children living with an EGID including EoE:
Eosinophilic Gastrointestinal Disorders Australian Support Network - ausEE
Facebook group for adults living with an EGID including EoE:
Eosinophilic Gastrointestinal Disorders for Adults - ausEE
Facebook group for eosinophil-associated diseases e.g. Hypereosinophilic Syndrome (HES), Eosinophilic Granulomatosis with Polyangiitis (EGPA):
Eosinophil-Associated Diseases Australian Support Network - ausEE
Facebook group for families and individuals living with feeding tubes:
AU Tubie Support
Virtual Support Group Chats
Our virtual support groups are hosted through Zoom and are an opportunity for people to share/hear stories, ask questions and connect with others with lived experience.
Please register your email here to be invited to our next virtual support groups: Adults with an EGID/EoEMonday 12 August 20247pm AEST
Families/Individuals managing tube feedingMonday 26 August 20247pm AEST
Parents/Carers of Children with an EGID/EoEMonday 9 September 20247pm AEST
Tubie TeensMonday 23 September 20247pm AEST
Families/Individuals with an Eosinophil-associated Disease (EGPA, HES etc.)Monday 7 October 20247pm AEST / 8pm AEDT
Teens with an EGID/EoEMonday 21 October 20247pm AEST / 8pm AEDT
View tips for Zoom Online Etiquette from Connect Groups.
Please register your email here to be invited to our next virtual support groups: Adults with an EGID/EoEMonday 12 August 20247pm AEST
Families/Individuals managing tube feedingMonday 26 August 20247pm AEST
Parents/Carers of Children with an EGID/EoEMonday 9 September 20247pm AEST
Tubie TeensMonday 23 September 20247pm AEST
Families/Individuals with an Eosinophil-associated Disease (EGPA, HES etc.)Monday 7 October 20247pm AEST / 8pm AEDT
Teens with an EGID/EoEMonday 21 October 20247pm AEST / 8pm AEDT
View tips for Zoom Online Etiquette from Connect Groups.
Support Group Meetings
We can coordinate face-to-face support group meetings hosted in your local area. Please contact us to find out more.
If you would like help navigating this website or have any general enquiries please phone ausEE's information line on 1300 923 043.
ausEE Inc. is operated by non-medical professionals and does not provide medical advice. Whilst we are able to provide up to date general information on topics relating to eosinophilic diseases, we are not able to answer queries of a specific or personal nature. To discuss issues of concern to you personally, we suggest you contact your General Practitioner (GP). If appropriate, your GP can then refer you to a Gastroenterologist for further assessment, investigation and advice.
In an emergency always dial 000.
For non emergency telephone advice, please phone your local GP or specialist. You can talk to a Registered Nurse 24 hours a day at healthdirect Australia on 1800 022 222.
The information shared on this site, our forums and at meetings is done so with the sole purpose of support and knowledge sharing. It is not intended to replace your medical professional in any way. Please consult your doctor before making any changes in care.
ausEE Inc. is operated by non-medical professionals and does not provide medical advice. Whilst we are able to provide up to date general information on topics relating to eosinophilic diseases, we are not able to answer queries of a specific or personal nature. To discuss issues of concern to you personally, we suggest you contact your General Practitioner (GP). If appropriate, your GP can then refer you to a Gastroenterologist for further assessment, investigation and advice.
In an emergency always dial 000.
For non emergency telephone advice, please phone your local GP or specialist. You can talk to a Registered Nurse 24 hours a day at healthdirect Australia on 1800 022 222.
The information shared on this site, our forums and at meetings is done so with the sole purpose of support and knowledge sharing. It is not intended to replace your medical professional in any way. Please consult your doctor before making any changes in care.
Useful Links
Allergy Life - Online Peer Allergy Support Groups
Allergy Support Hub
Carer Gateway
Caring Bridge
CURED Nfp Campaign Urging Research for Eosinophilic Diseases - Facebook group (international)
EGPA/Churg Strauss New Zealand - Facebook group (NZ)
Eosinophilic Family Support Network - Facebook group (international)Eosinophilic Gastritis Support Group - The Lower EGIDS (EoG, EoN, EoC) - Facebook group (international)
Eosinophilic Oesophagitis - NZ/Aus Support Group - Facebook groupEOS Network Eosinophilic Patient and Carer Community Hub - Facebook group (international)
Hyper Eosinophillic Syndrome (HES) - Facebook group (international)
Livewire
My Time
New Zealand EoE Support - Facebook group (NZ)
Rare Disease Kids Australia - Facebook group Rare Disorder Community NZ - Facebook group (NZ) Siblings Australia Inc.
Simone Albert - Food Allergy Counselling
Page last modified: 19 July 2024